Tuesday, June 28, 2011
We went to Galveston for the weekend! Actually, my mom called me and said my Aunt Joan and cousin Kayla was going to be in Galveston for a National jumprope tournament! So, any excuse to go to the beach is good for me! All the hotels were (of course) booked and if they weren't, they were over $200 a NIGHT! We did find 1 though. Saturday, we went swimming in the ocean then in the pool at the hotel. We were so hungry (from skipping lunch) that we ate at Golden Corral. Of course, you can't go to Galveston without going to Burdocks! By then it was dark, so we went for a walk on the beach. I LOVE to walk on the beach at night! We met a Dad and Son looking for crabs (they come out at night)! Anyway, next day we were eating our Continental Breakfast and we learned about the ferry. It's a FREE 20 min ferry ride to an island. So, we did that and got to see lots of dolphins! We did lots of beach combing, it was sad to see all of the trash that washed up on shore. We did find a couple OLD coconuts, some NICE whole shells, 2 hermit crabs (1 we brought home on accident and is in our aquarium), lots of bamboo, and a plastic bucket to put all our treasures in. When we got back we ate our Super Saver lunch at Wally World, and rented 1 of those cool bikes that our whole family fit on. Watch out while renting those, Michael got hurt twice on the foot, so maybe wear tennis shoes. At the jumprope tournament they were cutting hair for "Locks of Love", I have done this 4 times (I think) and had been wanting to do it, so I got it chopped off. Yup, thats what they did, pony tailed it and CUT! (usually they cut in sections) So, still waiting to go to the salon to get it styled. Then, we met up with my Aunt and cousin to say goodbye. We didn't spend much time with them, because they had to stay at the tournament the whole time, and when they did go anywhere, they had to stay as a group. So, the 1st day we all wore sunscreen, ya know "at the beach", but the 2nd day I did not. I wore my suit under my shirt and when we went over on the ferry, I took my shirt off and stuck it (what I could) in my pocket. When we got on the ferry to go back, I noticed my shirt was not hanging out of my pocket anymore. Bummer! 1 of my favorite shirts too! So, yes, I am very sunburned, but it'll turn into a very nice TAN! eventually, lol.
So, summer is not even half way over and already I'm so ready for school to start. We are going to the Texas Rangers baseball game on July 3rd (FREE Jerseys for kids day), plus it's a night game. We are also doing the summer movie clubhouse program at Cinemark, I'm all for 50 cent movies. We have done alot already like Cub scout camp and in the X-factor audience! But after next week we will be staying home. I'm sure summer will be over before we know it. We need to find a good summer reading program.... (Me just thinking to myself, lol.)
Wednesday, June 15, 2011
Scott has been having seizures, but it's a combination of a few things. #1 rule - take medication every day. It is summer, so it's harder to be on a set schedule since there is no school. Therefore, Scott didn't have his medicine Sunday morning and Monday morning (he takes it twice a day). But also when he gets sick he has seizures. His body is trying to heal his brain, when he gets sick, part of his body has to stop healing the brain and go heal whatever sickness is attacking his body. So, he has had a fever since Monday, and the little cough started today (for some reason the 1st symptom is always a fever). He had the seizure sometime Monday night while he was sleeping. I know he's had 1 because of his slurred speech, drooling, and weakness on the right side of his face. I feel the seizures are getting worse, because he never had the weakness on the right side (except the 5 min 1 he had in class).
Friday, June 10, 2011
This is my boy Scott. He has epilepsy. He had his 1st Grand Maul seizure at school when he was 4 1/2 yrs old. He is now 6 and I am just now understanding his condition. The 1st very important rule is medication. He has to take it!!!! 1st 6 months he took it whenever or not at all, I didn't understand the importance of it. Maybe I was in denial thinking he didn't need it, and this was just a phase. That Heavenly Father would make it all better. His 2nd semester of Pre-K he was on his meds and finally progressing (after the 8 weeks of hell). By the end of the year he finally learned his alphabet! But something still wasn't right. He was still having seizures, even when he took his meds. We would call the doctor and without seeing him, just up his meds. We would go in for his check-up and we would see the nurse (I've never even met the dr.) and she would know nothing about it. The end of summer came and we finally got into Children's Medical Center! By then he was having seizures EVERY DAY! He started Kindergarten and I informed the teacher about what to do if it happens. Well, it happened in class, she said it lasted 5 minutes. So, we went to Children's Hospital and the Dr. says the meds are prescribed wrong! He was taking a liquid every 12 hrs when it's suppose to be taken every 8! So, it totally made sense why he was having them every morning. So, he got on the right meds, but not without consequences. When you change seizure meds, it messes with your behavior for 8 weeks! Even if it changes a little bit, so Scott was not himself for 2 months, and it was hell.
So, now that learned lesson 1 we can talk about lesson 2. When u have a seizure you lose memories. Knowledge is ZAPPED from your brain and is no longer there. So, from all the seizures he had the beginning of Kindergarten, he has forgotten the alphabet. So, Christmas vacation came and they wanted the kids to practice reading words, I was thinking "He just finished learning the alphabet and now u want him to read!?" Anyway, he's graduated from Kindergarten now and it's summer.
He doesn't like rules, and likes to do things his way. But I still have to help him get dressed in the morning and feed him his medicine. He is so sweet and loves to help and learn. He is smart, the knowledge is in there somewhere, he just has to find it 1st. Therefore, he is slow to answer. His handwriting has improved greatly over the last month. He is in Special Ed. and she worked with him twice a week. The Dr. says he will grow out of it by the time he is 14 yrs old. Wow, wouldn't that be great, only 8 more yrs. His appetite is good, he eats and loves everything! He is always exploring, loves the outdoors (even when it's 90 degrees). I think he will be great in sports, we put him in t-ball this year and it was a slow start. I think he might need something more active (too boring for him), so we are going to try football. He's a contact kinda person. I've never even been to a football game before!
I worry about him alot, but I think things are getting better. (or I hope)